Tuesday, December 14, 2010

Positions Available!

Positions Available!

I am SO EXCITED to have all of the funding in place to hire MY OWN staff for Nathaniel and our families needs, but at the same time I am a bit nervous about finding the RIGHT people to hire! Really nervous! The finding came through close to 2 weeks ago. I wrote the ad last week. After MUCH prayer about HOW to advertise the positions, I am finally posting this... HERE! :)

You might think I am crazy, but I have thought and thought about this. I want the information out there, but don't want ten million crazies applying either, so I post it here, and pray that the Lord directs the right people here! I will also be looking for people advertising that they are available (after all they are serious enough to put themselves out there..) and directing them here to find out more about us. This also gives people who know us a chance to share with those they know...Good idea? I guess we will see!

So without further to do....

In Home Care Providers Wanted!

We have openings on our care team! The client is a special 10 year old boy with multiple medical and neurological needs. We are looking for some caring, compassionate and fun loving individuals to join out care team working in our home.

The ideal candidate for these positions would be individuals who:
  • Have a heart for helping
  • Love to play, especially outside and sports!
  • Are willing to learn about and adjust to his "quirks"
  • Can provide constant one on one supervision while working (sorry but distractions like other children, homework, excessive talking or texting on the phone, etc. will not work with this position)
  • Will be willing to be trained on an existing ABA behavioral plan that is in place and carry out the implementation of said plan.
  • Will be willing to be trained on para medical procedures as needed, including but not limited to, catheterizing, and orthopedic brace care and assistance.
  • Be physically able to be safe during occasional physical tantrums.
  • Be accepting of working in our Christian based home.
  • Be able to clear a Department of Justice background screening.
  • Be willing to be contracted through the funding agencies.
We are looking for a combination of 2 to 3 individuals to fill the following shifts:
7:00 am to 8:30 am Mon-Fri
4:30 (or 5) pm to 8:30 pm Mon-Fri (usually latter on Wen)
a 4 hour shift on Sat (pretty flexible on timing here)
and 9:15 to noon 2 Sundays per month

Hours do flex some on school holidays and breaks (we usually use more care during those times, not less!)

Our home is located in Los Osos, and compensation will be $10.00 per hour.

Please respond with a brief description of yourself, the hours you are interested in, any related job experience and the best way to reach you!

Thank you for your interest!

Monday, December 13, 2010

I may be biased.....

But aren't those some beautiful kids???

I was so EXCITED to get our disk of pictures back today from the friend who took them for us!

The drama queens....
 The groupings...
 and  the special ones...
 they all came out FABULOUS!!!
 The near impossible to get group shot even is cute!

And this moment....

I think the photographer liked my littlest Diva a lot...
We got tons of great shots of her all full of her attitude, which will be fun in years to come!

Thank you to my talented friend who did such a great job!!!!!

Friday, December 3, 2010

The Voice of Truth

"The Voice of truth says "do not be afraid!"

And the Voice of truth says "this is for My glory"

Out of all the voices calling out to me

I will choose to listen and believe the Voice of truth!"

Casting Crowns, Voice of Truth

As I walk through life everyday I find myself struggling to hold onto what I KNOW are truths in life. Life seems to want to steal away the security of clinging to the Lord, but I have found myself really focusing on the voice of truth right now.

I have always loved this song. The opening verses just speak directly to my heart every single time I hear the song.

Oh,what I would do to have
the kind of faith it takes
To climb out of this boat I'm in
Onto the crashing waves
To step out of my comfort zone
Into the realm of the unknown
Where Jesus is,
And he's holding out his hand

The message in the whole song is one that I can so wrap my heart and mind around, no matter what. This week I have heard this song so many times, and it has directed me back to the truth time and time again.

Because life is NOT easy. And things WILL go wrong. But God IS in control and He WILL work all things together for His good.

So time and time again in the past few days I have found myself having to look deeper than my shallowness to find the voice of truth, and I would like to share some of the truths I have found this week.

It has been cold here. Not cold like some parts of the world, but cold for this wimp. And not having a reliable heater in our new home has been a challenge for me. I have found myself whining (especially on facebook statuses!) about being cold. But the truth is that it is not that cold here, there are places much colder on a regular basis. And the truth is that I am fortunate enough to have more warm clothes to put on and beautiful warm quilts to curl up in when I am cold. There are MANY in this world colder than I that don't have any more clothes to put on or quilts to cover up in!

I am consumed with medical stuff in my brain right now. Nuropsychology reports that rip my heart out. Behavioral Analysis that drives me right up the wall. Urology battles that make me want to beat my head against that same wall. IQ scores that shake my world. And doctors that keep drowning me in the negatives. But the voice of truth? Doctors said my son would never walk, God made him to not only walk, but to run and jump and surf. Doctors only have so much knowledge, but I have way more FAITH that the Lord is for us, and ONLY He knows what the future will hold. It is my job to focus on HIM through it all and find the voice of truth in all of the static from the doctors. (PLEASE do not miss understand me here, I think our doctors are, for the most part, wonderful, and that they are using their book knowledge, but I believe God can do ANYTHING and I rely on that faith. I am NOT putting down any of our medical team!)

It is true that we live right on the edge. Money is always tight, and I have to think about every penny I spend. But the truth of the matter is that God has continued to faithfully provide for the kids and I. Food is a constant concern, but the truth is that God has placed amazing resources in my life that I am able to feed my family of three month in and month out on a $100 grocery budget. There is an extra need in a month like the brakes on the car needing replaced, or a wheel chair ramp needed? God provides in various ways that those needs get met. No matter what comes our way, as long as the kids and I are walking on the path that He would have for us, God meets us right where we are at. So that freezer in the garage that seems to not be working tonight? I am working VERY HARD on not worrying about it, but rather looking forward to seeing how God is going to direct us in this one. (Any fix it people reading today? :) )

I have never wanted to be a divorce statistic, but the truth is that God does not want my children and I to be a domestic violence statistic either! I can make every Biblical argument against divorce, but God called me to walk away from a highly abusive situation. I must focus on His voice, put one foot in front of the other on God's path and find healing in a healthy manner for my family. And amazingly, when I finally stopped arguing with Him and just started waking, He has paved the rocky road in such miraculous ways. He is right there with us.
I am ridiculously lonely right now. This has been the longest season of my life without close friends or significant others close by. And I am a wimp about it. My two primary love languages are touch and acts of service... that makes it hard to feel loved when most of my closest friends do not reside in the same state as I do. Skype hugs just don't do me :) I find myself wallowing in self pity, but the voice of truth says that when I focus on Him He will take complete care of us. The truth is that I don't have to look any further than the word of God to fill those lonely holes. And when I look around me, I do see some meaningful friendships budding up in my life. Now I have to look to the voice of truth to figure out how to trust again :)

The bottom line is, in every situation I could choose to feel sorry for myself, or wallow in self pity, or even just be selfish! OR I could focus on the truth, figure out what God is saying and walk in a much more glorious manner. Who wouldn't want  to hear the voice of truth??? I know when I turn the world off and think about it, I certainly want the voice of truth directing my life!

Now I am going to focus on the Voice of Truth for this next appointment with the urologist in a few hours...

Tuesday, November 30, 2010

Oh hear my cry....

Tonight is one of those nights...
The ones when I have to immerse myself in the Lord or I will go CRAZY with worry, anxiety and mind games.

The LORD is a refuge for the oppressed,
a stronghold in times of trouble.
 Those who know your name trust in you,
for you, LORD, have never forsaken those who seek you.
Psalm 9:9-10
Nathaniel has been undergoing some very intensive neurological testing the last few weeks.
This has been a difficult place for me to get to. It started long ago, but it came to head for me almost a year ago after having some very heart searching conversations with a close personal friend. After talking to him I REALLY started seeking out answers. And the more answers we get, the more questions there are. So it has come down to some major in depth testing, of which I get the first (and to me most intense) results tomorrow. (And man am I wishing that I could take that friend of mine with me to this appointment, but it is not in the cards!)
The LORD is my strength and my shield;
my heart trusts in him, and he helps me.
My heart leaps for joy,
and with my song I praise him.
The LORD is the strength of his people,
a fortress of salvation for his anointed one.
Psalm 28:7-8
I KNOW that God has a plan.

And when I am completely focused on Him, then I am fine.

But then I have to blink, or breathe, or someone calls my name, and I loose my focus and then I become TERRIFIED!

I mean, isn't our plate full enough? The Lord really couldn't give me anything else could He? And then I think of all of those that carry burdens so much more than I do, and I know that is cold get worse. But I am just not sure that I am strong enough for one more thing!

And yes, I DO know Philippians 4:13 (I can do all things through Christ who strengthens me.) VERY well, but still......

So, I have been on the edge of this steep cliff all day today.

I have this appointment at 8 am tomorrow morning, and I don't know what it holds for me.
I am terrified of going.

I am weary of going alone, for I am tired of feeling so alone in this world.

And I just have this gut feeling that whatever is said there tomorrow is going to rock my world....

So for now I am blasting my worship music, curled up with my bible next to me, and ready to try and sleep...

but I know tomorrow is coming, and there is no stopping whatever will happen.

 So I am going to put on my big girl pants,
tuck away the tears,
clothe myself in the armor of God,
and walk forward in this journey.

But if you think of me, or my sweet boy tomorrow, won't you please say a prayer for this situation?

Special Chair Blessings...

 This is the front of our new house.
Notice anything about it?

Oh.. yea, I am NOT asking you to notice the cracked sidewalk or the boxes of things waiting for me to put them away... I was thinking more along the lines of the STEPS leading into the house.

Steps are not so much fun with a wheelchair. And definitely NOT fun with a little guy who is going on 70 pounds in a wheelchair!

 Well, some very kind, very generous men from a local church heard about our need for a wheelchair ramp and they came out on Saturday to bless us.

 They even allowed the Diva to supervise the project, and answered her three million questions with patients and kindness.

 Then she must have got to be too much because they put her to work! :)

These 4 men who I have never met before in my life gave up their Saturday morning, worked in the cold rain and blessed our family with a fabulous new ramp into the house.

 Nathaniel was in a LOT of pain (he just had surgery a few days before) so he hung in the house most of the morning, but he did come out for this first trip down the ramp.

And  to thank these wonderful men.

Our people must learn to devote themselves to doing what is good, in order to provide for urgent needs and not live unproductive lives.
Titus 3:14

I believe that these men showed the love of God and provided for an important need in our life, and for that I am so grateful and blessed. God continues to amaze me with His wonderful provision and love.

Missing Taylor ....

Blessed be the God and Father of our Lord Jesus Christ, the Father of mercies and God of all comfort,  who comforts us in all our tribulation, that we may be able to comfort those who are in any trouble, with the comfort with which we ourselves are comforted by God.

2 Corinthians 1:3-4

Babies on the brain...

We have had babies on the brain over here recently!!

Nathaniel *LOVES* babies...
Totally, utterly *LOVES* all babies!
He always asks to hold whatever baby he sees.

He loves on Bella at church.
He begs me to invite Claire and her mommy over so he can hold Claire.

(this is Nat holding Claire in September. He is such a great baby helper!)
 (and beings as Nat had fun shoelaces to play with Claire didn't seem to mind being held!)
(and here is Nat loving on darling Carly in August)

We were fortunate enough to get to love on Claire recently, but that does not seem to be enough for Nathaniel. He keeps asking me for a baby sister for Christmas. And that seems to be his answer to everyone who asks what he wants for Christmas, a baby sister. I find it hilarious that he is only asking for a sister, not a brother, only a sister. But I am also having a very hard time explaining to him that a baby sister is not possible for Christmas. Let me count the ways that it is not possible... umm... it's a little too late to start on that gift, and even if the timing weren't the problem it's not like there is a man anywhere remotely close to my life! And the kicker is, I LOVE babies too. There is nothing I would like more than a Godly husband and a growing family, but I know that is not the path God has called me to. So it breaks my heart into a million pieces every time he insists that the ONLY thing he wants for Christmas is a baby sister.

So that is how Nathaniel has had babies on the brain, but I have had babies on the brain too! I made a prayer quilt for a darling child of God born with a few struggles not long ago, and I am knee deep in a special birth quilt for one of my best friends who is expecting his first child any day now. I have poured my heart into these precious quilts, and as happy as I am to do it, part of me is still (yes, still 7 years latter..) mourning the fact that I won't get to do this for another of my own. Crazy emotional times here!

So we have babies on the brain and the heart over here.... so if you have one that you want to share you know where to come!

Monday, November 29, 2010

Family Work Weekend at the Ranch

We recently had a family work day  at my brother's ranch. I had so much fun, and it was nice to work along side of family. I will confess though, I think I left before the tempers started flaring! Reports that have trickled in from the day after we left were not so good...
(My little brother, Grady, teaching Josie the finer rules of power saws)

 The goal of the weekend was to do repairs to the main house (including fixing all of the leaking windows), build a covering for the patio area and paint the main house.

(Brianna being a typical teenager and playing with either her phone or iPod instead of working!)

Friday's work crew included:
Grady (his ranch)
My grandparents
Bri, Josie, Nat & Audrey
and myself.

 (Bri & Jo are regular assistants to Grady on the ranch)
(putting up window pieces to avoid moisture around the windows )

I was in charge of taking pictures for Bri & Jo to prove that they worked for their FFA hours at school.

 (me playing with one of my favorite toys!)
 But I also brought my airless sprayer thinking it would be more fun and easier to paint the house with. I got two complete sides done, and went over the side that was rolled by my grandfather earlier in the first day before running out of paint.

 It was really nice to be out at the ranch. It is seriously in the middle of no where, with very few people around so the peace and quiet was so refreshing to me. Don't get me wrong. I do not think that I could live there,(no store, no gas station, no nothing other than the Cal Fire Station, bugs everywhere, freezing cold and blistering hot, dust and dirt... yea, not so much me) but it was nice for a visit!
 And the views were beautiful!
 (Nathaniel and his great grandfather, a.k.a. GGpapa, chilling at night)

After a hard day (or afternoon in my case) of work we relaxed and enjoyed family that night. Grady made a super yummy dinner for everyone and we hung out around the fire Josie built. Nice!

 (my grandmother, a.k.a GGmama, hanging out with us)
 The next day we were back at work bright and early, and my parents brought paint and joined the party around noon.
 (please notice the safety glasses ON TOP of Josie's head while she is drilling... not sure she should use this one for school!)

GGmama helping her Great Granddaughters with power tools.... do we see why I have a love for all things power toolish??? :)

 Audrey was very disappointed that Uncle would not let her paint more, but he said he like the paint ON the fence or ON the house, not so much on the ground :) So she spent a great deal of time supervising, exploring or playing with the ranch dogs.

 Josie just loves ladders.... can't you tell from the scowl on her face?

 And Audrey finally found some play mates....
 Ladybugs everywhere!
Then we were blessed with another beautiful sunset and yummy dinner (this time brought out by Papa) before the kids and I headed back into civilization and our warm beds for the night.

All in all it was a good weekend.

We got the whole house painted, and the repairs that needed done done. The porch wasn't quiet done, but well on it's way.

It was good to see family and hang out.

 I got some very special time with my grandfather, who is very ill and struggling with choices right now. We are the only two believers in our family, and it was a special treat to get some quiet time alone with him to talk about what's happening in his life, about how God plays into it and to reflect on the blessed life he has been privileged with. It was also hard for me because I am not ready to let go of him yet, but I also know that God will get me through that too. 13 years of battling for your life is a long time... and that is just from me, one of his primary care takers, not from him who has been doing the battling! Praying peace and comfort over him in all things!

And to be honest, I am so hesitant to take Nathaniel into unusual surroundings because he usually freaks out, but this trip wasn't too bad. Now I am not saying it was perfect (we did have a few major melt downs), but we took his electronics and everyone just got that he would plug in while we worked, and it worked pretty well. So I am happy that we found a way to do what I needed to without rocking his world so bad that I was paying for it for weeks to come. That is a first in a long time for us.

What have you done recently that stretched your comfort zone? Or blessed someone else?

Thursday, November 25, 2010

Happy Birthday Gramie Sharon!!

I am cleaning pictures... again.... and noticed that I never posted Gramie Sharon's birthday celebration.
 It was a simple night of family and laughter, but much blessing too.
 One silly thing the kids always do is try to write the sweetest, sappiest things in Gramie's cards. She cries so easily, so their goal is always to make her cry... silly kids! They succeeded again :)
 My mom always loves my sun hat, so we gave her one of her own... Now maybe she will leave mine alone!
 I tried my hand at a gluten free birthday cake... oh my was it YUMMY!!!!
And isn't this one just precious???

Happy Birthday (again) mom!
I love you!!!!

Wednesday, November 24, 2010

It's THAT time.... surgery time!

My mind has not fully wrapped itself around this procedure. I have not been fully confident that we were going to do this. My prayer and answer for the past few weeks has been "I think this is what we are doing... if it is not what God wants he will tell me."

Really... I am in a zone on this one. And it's crazy too, because this is a relatively simple one! Today our two fabulous orthopedic surgeons are putting screws in the growth plates on the longer bone in Nathaniel's lower legs. This bone is growing faster than the other one, causing his feet to twist in an odd way. So the theory is that we are going to hold them still and allow the other bone to catch up. Good theory I guess... walking is great! But seriously, I am in a fog on this one.

We are at a new surgery center. Before, all of our Ortho stuff has been done at Ventura General, but today the doctors needed to operate at Cottage Outpatient in Santa Barbara. The latest surgery time they could give us was 830 am, which means we left home at 430 this morning! Crazy tired.

Before when we have done general, Nathaniel has been allowed clear fluids up till about 3 hours before surgery. Not this time. They were adamant that he have NOTHING after midnight. Of course he woke up at 130 this morning DEMANDING water. Every 15 minutes he would ask me for water.... every 15 minutes like clockwork from 130 am till they took him back.

So we got here right at 630. Good timing. They took us back to the Pre Op room at 745ish... good timing for an 830 surgery. They got us all ready, then told us 10 more minutes... not bad. Only running like 15 minutes behind. Not bad at all. Then there we sat. FOREVER. With Nathaniel STILL begging for water constantly.

 At 915 I asked how much longer... no answer.

At 930 I asked if there was a problem..... no answer. 

At 945 I was about to pee my pants and I DEMANDING to know what the heck was going on. So little lady, who clearly did NOT speak English went off to find someone to help me....

At 955 FINALLY someone came in and said "Didn't anyone tell you what was going on?"

Ummm...... NO! It seems that no one bothered to make sure that the OR had the tools needed to do Nathaniel's procedure today! So they had to get them from another facility. Then they had to process the tools their way. And then FINALLY at 1015 they took him back to the OR... FINALLY. I have heard such great things about this facility, but they did not live up to their reputation for us today!

And now in the time that I have written this the doctor has come out to tell me that they have done both legs, and Nat is in recovery now. That is good... waking up is how I like him best during these things! He might get mean, he might get violent... but all of that is signs that he is waking up and made it through yet another procedure....

Thank you LORD!

Updated Again: I guess in my hurry to get back to the recovery room, I THOUGHT that I pushed publish.. but I guess not. We made it home and had a restful night. It was wonderful to have my children back together again, see how concerned Audrey was for her brother, and just relax together.

I also did the first dressing change, and while one leg looked BEAUTIFUL, the other looked pretty bad. Please pray with me that it was just these mommy eyes, and that is everything is just as it should be!

Wednesday, November 17, 2010

Eyy There Mate!

It's time to meet the Soares Family Pirates!
Okay, okay... so I am a TAD BIT late posting Halloween pictures....

But they are CUTE!
And let's face it, EVERYONE else posted a few weeks ago, so you were probably on Halloween burn out, but now? It's cute again :)

Well... I can tell myself that right?

 I am actually very pleased with these costumes this year. I only spent $5.00 TOTAL for the three costumes! Everything else we had on hand and I could throw it together to come up with these cute looks!

We had fun dressing up as a Pirate Family and spending some fun time together on Halloween.

First we headed over to the Pumpkin Patch to hang out and get some cool pumpkins...

Look! They are actually BOTH smiling in the same picture!! HOW did that happen? I know, a fluke hu?

Then we headed over to a local church that throws an AMAZING Harvest Festival for the community on Halloween. We had a blast, as usual.

There was trunk or treating...
with GREAT decorations!

And fun games, and yummy cotton candy and even pony rides...
I would love to post the rest of the pictures...
But I guess I post too many pictures because Blogger just told me I ran out of free storage space!
That bites.... but I guess some are better than none :)
And I will have to figure out how to create more free space in the morning, because I don't do well at problem solving at 3 am :)

Hope you enjoyed the pictures!
I know I enjoyed hanging out with my little pirates!